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Reviewed: Feb. 27, 2007 |
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| The
Patient Experience: How Breast Care Can Change
Lives
These first-hand accounts are from
actual Loyola University Health System patients,
who received care for breast cancer. Their stories
offer a unique perspective on our patient experience.
We hope you find them helpful.
Tara's Story:
Quieting the Mind May Enhance the Immune System
Janet's Story: A Woman Who
Chose to Fight
Quieting the Mind May
Enhance the Immune System
Tara Cronin knows how quieting the mind to focus
intently on a raisin or another everyday item
can relieve stress and help her deal with the
breast cancer she was diagnosed with in July 2003.
Cronin was part of a Loyola study about the role
mindfulness meditation might play in improving
a cancer patient's outlook on life, thereby spurring
the immune system to produce more cancer-fighting
blood cells.
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Meditation is used to quiet the mind.
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Cronin,
43, lives in Glen Ellyn with her 13-year-old
daughter and runs her own business as a
geographic information specialist helping
corporations create intelligent maps. Last
summer she "buried a girlfriend who died
from breast cancer" and for that reason
Cronin decided to have a diagnostic exam
herself. To her surprise, a small lump was
found near her chest wall. Her cousin urged
Tara to visit Loyola University Health System
(Loyola) Breast Diagnostic Center, where
she was diagnosed with early stage breast
cancer.
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Multidisciplinary specialists at Loyola's Cardinal
Bernardin Cancer Center (CBCC) took Tara from
diagnosis through recovery. Following the biopsy,
Cronin had two surgeries to remove the tumor and
surrounding tissue. While she was undergoing drug
and radiation treatments at the CBCC Breast Oncology
Center in the fall, she was invited to participate
in the mindfulness meditation study.
Linda Janusek, RN, PhD, professor, Loyola's
Niehoff School of Nursing, is the principal investigator
of the project, and Herbert Matthews, PhD, professor,
Department of Microbiology and Immunology, Loyola's
Stritch School of Medicine, is the co-investigator.
Through collaboration with physicians from Loyola
Breast Care -- Kathy Albain, MD, medical oncologist
and director of the Breast Research Program; Sheryl
Gabram, MD, surgeon and former director of the
Breast Clinical Program (formerly with Loyola);
and Kevin Albuquerque, MD, radiation oncologist
- three groups comprised of 12 women have been
enrolled. The goal is to enroll 70 women in the
study, which continued through fall 2005.
The women take part in eight weekly sessions
conducted by specially trained clinical psychologists,
in which they learn mindfulness meditation and
gentle hatha yoga to control stress, depression
and uncertainty about their future. They learn
various meditation techniques and are asked to
practice daily at home.
Besides measuring changes in mood, perceived
stress and quality of life, Janusek and Matthews
also examine whether regular practice of mindfulness
meditation can enhance immune system activity.
Before, during and after their meditation training,
the women give blood samples to be tested for
markers of immune system activity and the quantity
of natural killer cells - white blood cells that
can recognize and kill tumor cells. The level
of cytokines - chemicals that help regulate the
immune system - also are measured. No other study
of mindfulness meditation has focused specifically
on breast cancer patients in treatment nor examined
immune system response to cancer in this way.
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| Mindfulness
is an ancient concept in many religious traditions,
particularly Buddhism. The idea is to step
back from the constant stream of thoughts
that run through a person's mind - to stop
giving energy to thoughts about the past,
the future and interpretations of the present
and to find the stillness that exists between
thoughts. Instead of getting caught up in
"what if" thinking, the study participants
learn to be nonjudgmental and open to the
present moment. On a biological level, mindfulness
meditation can help people reduce the surge
of stress hormones that usually is triggered
by worry and fear.
Cronin, now a breast cancer survivor,
calls the mindfulness techniques she learned
"wonderful, very beneficial" and finds them
useful in dealing both with the everyday
stress of running her own business and the
fear of cancer. "When I feel stressed, I
use the techniques, and it makes a big difference."
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Cronin engages in meditation. |
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Cronin is very thankful to the Loyola staff for
their coordinated team approach to her illness.
"Talk about the best care I could have ever had
- my doctor, the nurses, even the receptionists.
Whatever their formula is for putting together
a team, it works. I feel very lucky."
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A Woman Who Chose To
Fight
When Janet Cunningham, 50, discovered a lump in
her breast, it wasn't fully unexpected. Her mother,
grandmother and aunt had all developed breast
cancer during their lifetimes. "I knew this was
going to happen," says Cunningham. "It wasn't
a matter of if, but when."
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Janet Cunningham and her dog Kedzie enjoy
a day in the park. |
The
lump was diagnosed as malignant. Perhaps
because she'd had years to prepare for that
moment - or perhaps because it's simply
her nature - Cunningham faced the news with
an earnest determination to take charge,
a feisty refusal to be a victim. Something
was broken, and she would find a way to
fix it. She had seen her mother battle cancer
in her 30s and go on to live another 40
years, so she knew the cancer could be beaten.
But while this gave her hope, it didn't
give her the answers to the flood of questions
that tiny lump brought into her life. And
Cunningham intended to ask them all.
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First she called her gynecologist, who met with
her the next day and provided the names of several
surgeons and cancer centers. She spent the next
two weeks investigating her options. After meeting
with surgeons at several hospitals, she was convinced
she knew the best place to go for treatment. She
chose Loyola's Cardinal Bernardin Cancer Center.
"I was very comfortable with Loyola," she says.
"There was a great rapport with the doctors there,
and the Cardinal Bernardin Cancer Center is so
impressive." She was especially pleased that she
would benefit from the exceptional expertise of
her surgeon, Sheryl Gabram, MD, former director
of the Breast Care Center.
Cunningham's awareness of her family history
had given her time, through all her years of regular
checkups and mammograms, to consider what she
would do if and when breast cancer developed.
Her children - two sons and a daughter - supported
her decision to undergo a double mastectomy and
reconstruction. She was grateful that her medical
oncologist, Ellen Gaynor, MD, offered alternatives
but supported her decision as well. "You ultimately
have to make your final decision and be comfortable
with it," Cunningham says.
Determined to stick to a one-year timeline for
her treatment and recovery, Cunningham arranged
to make the most of Loyola's team approach. Literally
moments after Dr. Gabram completed the mastectomy,
her "outstanding" plastic surgeon, Juan Angelats,
MD, stepped in to begin reconstruction with saline
implants. "Everybody was so coordinated, and they
were such a great team," she says.
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| After
a few weeks, Cunningham and Dr. Gaynor met again
to discuss chemotherapy. Listening to Dr. Gaynor's
advice and doing her own homework led her to four
treatments over three months, followed by a rest
period and then six weeks of radiation. There were
also regular visits to Dr. Angelats, who slowly
inflated the implants with saline. "I'm very, very
pleased with what he did," she says.
Cunningham also undertook a somewhat different
course of treatment - a daily dose of long, calm,
meditative walking in the park with Kedzie, her
American Eskimo dog. To this day, it is Cunningham's
sincere belief that she survived cancer for two
reasons: her doctors and those walks.
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Sharon Williams, pharmacy technician fills I.V.
bags for chemotherapy. |
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Knowing that her family history places her daughter
at higher risk, Cunningham is investigating the
genetic counseling service available at the Cardinal
Bernardin Cancer Center. It's just one more way
that she exemplifies the cancer patient who chooses
to fight - to know what to expect, how to prepare
and what the patient can do to make a difference.
"The bottom line is: Be your own advocate. Be
knowledgeable. Don't be afraid to ask questions.
And don't be afraid to ask for help." Exactly
what Dr. Gaynor and the staff at the Cardinal
Bernardin Cancer Center were prepared to give
her. "They were great," she says. "My family and
I had so many questions. [The doctors] were very,
very patient with me."
Cunningham continues to make visits to her doctors
at the Cardinal Bernardin Cancer Center and has
had no recurrence of cancer. "I've had a nice
past 50 years," she says, "and I'm going to have
a great upcoming 50 years."
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